Global Disability Summit Survey – Young Persons with Disabilities

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#GlobalDisabilitySummit Survey Young Persons with Disabilities we want to hear their views on the Summit themes as they have the right to be included, share their suggestions, have their voices heard & be part of the change#IncludeMeTOO #NowIsTheTime

Please share this survey widely as we want to hear from 11-30 years old to influence the discussions being held at the Global Disability Summit on 24th July 2018 and ensure the commitments made include what matters to disabled children and young people #IncludeMeTOO

https://www.surveymonkey.com/r/2MFK2NV

Include Me Too

I Need Straws: The importance of the availability of plastic straws on request

There has been a great deal of discussion about banning single use plastic straws to reduce waste and toxins in our seas and oceans leading to environmental pollution.  A number of heritage organisations are now replacing plastic straws with paper straws in their cafes due to this reason.

By removing plastic straws we are excluding disabled people from being able to drink independently in our museum cafes.  Is this fair to exclude people, when there are other causes (wrapping, bags) too?

So, can we work together so our journals and magazines don’t arrive on our doorsteps wrapped in plastic?
Or can these be available online instead of printed?
For our meetings and conferences, can we print less?

Museum cafes have plastic straws available on request for people who need them.

Tourettes Hero, Jess Thom has written two excellent blog articles on the need for plastic straws in her day to day life.

Link: https://www.touretteshero.com/2018/03/19/the-straw-fan/  (read this article first)
Link: https://www.touretteshero.com/2018/07/11/ineedstraws/ (second article)

Penny Pepper, writer and Disability Activist has written for the Guardian on how plastic straws are vital to her and other disabled people.
https://www.theguardian.com/commentisfree/2018/jul/09/disabled-person-plastic-straws-baby-wipes

BBC:  Plastic straw ban disadvantages disabled people, says Paralympian
https://www.bbc.co.uk/news/uk-wales-43485362

Have you written a blog on how banning plastic straws will effect you? Do let us know via info@musedcn.org.uk

 

 

Can you help? Neurodiverse participants needed for MA Arts based research (London)

Jess Starns, founder of ‘Dyspraxic Me’ a charity for young adults with dyspraxia. Jess is currently completing Inclusive Arts Practice MA at the University of Brighton.

From 15th October- 26th November 2018  Jess shall be delivering her research project. Jess’ Masters is arts based and shall be using art as a way together data and discussions responding to her research question.

The research question is:
How should we interpret and curate the history of labelling people with specific learning difficulties (neurodiversity)?

Jess is currently looking for a maximum of 10 participants to work with her as a group and being involved in the
arts-based research. The research is for participants who define themselves as having a specific learning difficulty (neurodiversity) for example dyslexia, dyspraxia, dyscalculia, dysgraphia, ADHD, ASD and autism.

The research will take place over 7 sessions. From 15th October till 25th November for 7 weeks.

The research will take place at the:
Free Space Project, Kentish Town Health Centre, 2 Bartholomew Road, London NW5 2BX.

Apart from the 2nd session on Tuesday 23rd October will take place at:
The Wellcome Collection, 183 Euston Road, Kings Cross, London NW1 2BE.

Each session will last for 3 hours from 11am till 1.30pm.

What is the purpose of the study/project?
The purpose and aims of the study are:

  • The research will start conversations through learning about neurodiversity history by exploring archives, newspaper articles and museum objects, reflecting on their own personal experiences, in comparison to, and informed by, archive items at the Wellcome Collection. Learning what is important to the neurodiverse community when telling the history of labelling people with learning difficulties including charitable, medical, educational and personal narratives.
  • Discuss how to tell an unbiased narrative through historical accounts and personal experiences.
  • The terminology to use when talking about neurodiversity, the history of classifying people with learning difficulties, challenge prejudice views, to think about why there is a focus on ‘curing’, exploring current attitudes and how we portray neurodiversity in the media.
  • Through the research I would hope to find out for museums and collections what’s important to the neurodiverse community when telling the history of labelling people with learning difficulties? Through the charitable, medical, educational and personal narratives.

Please let Jess know if you have any questions or would like to find out more about the research.

If you are interested and would like to know more information please contact Jess via her university email address: Jas35@brighton.ac.uk